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We have changed our name! Kids on the Spectrum is now called Living on the Spectrum

A disabled person was publicly snubbed by the NDIS Senate Committee and people are asking, WHY?

Publicly snubbed as co-chair of the NDIS Senate committee last week, and people are asking, WHY?

Not surprising, Senator Jordon Steele took to social media to express his frustration over the decision to appoint a non-disabled person as the NDIS deputy chair position last week.

National Free Autism Directory. Sharing NDIS senate committee information,

“Last night, there was a contest for the Deputy Chair of the NDIS Senate Committee. Disappointingly, the major parties joined together to uphold the status quo and elect Sen. Hollie Hughes instead of centering the lived experience of a disabled person. Let’s talk about it.”

Senator Jordon Steel went on to share his frustration over the Governments lack of commitment. Excluding the lived experience is frustrating.


Bit of a dissapoonting update for everyone. Our community deserves better. #auspol #disabilitytiktok #nothingaboutuswithoutus

♬ original sound – Jordon

“It’s really disappointing that the major parties united together to uphold a status quo which excludes disabled people and uphold the convention that as a government person chairs one of these committees and an opposition person deputy chair is more important than elevating lived experience at this important time”

The NDIS CEO position remains unfilled along with several board and chair positions. A priority now is to fill these remaining positions with disabled representatives.

Liberal Senator, Hollie Hughes has been appointed the Deputy chair of the NDIS. Senator Hughes has an autistic son and has been well received among some carers. Senator Hughes has been a staunch advocate for those she sees as severally autistic.

Backlash over Senator Hughes new appointment.

However, the news of her new appointment has not been well received among some autistic advocacy groups. With some calling out her language and attitudes to those autistics who she perceives as high functioning. Senator Hughes has called out some high-functioning autistic advocates as having a “Woke Agenda.” In an effort to confirm that they do not fully represent the entire autistic community. And that they are classified as “Aspergers” rather than classic autism.

Chloe Hayden is among the growing number of advocates sharing their frustration about Sen Hughes’s recent appointment. Hayden shared her disappointment via Facebook;

“Hollie Hughes was elected as deputy chair of the NDIS, both major parties choosing to elect her, instead of electing the one actual disabled candidate, therefore excluding disabled people from conversations that we need to be centred in once again”

“She believes that we need to include a ‘head circumference check’ in autism assessments, and has expressed her disdain for the autistic community and accused ‘high functioning autistics’ as ‘not being autistic enough’, levelling accusations of a ‘woke agenda’, and questioning the identity of so called autistic voices”

While others took to TikTok to voice their viewpoint.


Would highly recommend going to Chloe Hayden’s fb page and reading the posts she made about this #autism #autisticadult #autistiktok #auspol #autismawareness

♬ original sound – Phoebe

@Phoebe. Sharmilla went on to describe her frustration;

“Dear Australian Government, in the words of famous Autistic advocate Greta Thunberg, HOW DARE YOU. You have elected Hollie Hughes as both the deputy chair of the NDIS and the Chair of the select committee on Autism and this is terrifying”

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